Ethan M. Lindberg Foundation

My son Ethan was born with a congenital heart defect in 2005. Though he lived on this earth just 7 years, he transformed our lives forever. I founded Ethan M. Lindberg Foundation to fill in the gaps our family experienced as we cared for Ethan. We provide practical support, fund research and spread joy to support the congenital heart disease community.. 

My Blog

I write about topics that tug my heart. I write about my life as a mom to four boys, one who lives in Heaven, two healthy middles and my youngest living well with congenital muscular dystrophy. I write about finding purpose, navigating grief, about faith and about how we can grow and become in and through our suffering. I'm passionate about advocating for children with chronic illness and special needs. 

I love to encourage people and challenge them (and myself) to be their best. I am a student on this earth and I'm learning as I go. 

 

 

 

Four Hearts Shop

I created Four Heart Shop to support support the Ethan M. Lindberg Foundation's mission of supporting children and families facing congenital heart disease. This is shop full of two things I love, fashionable clothes and inspiring words. 

 

Invited Speaker:

Pediatric Cardiac Intensive Care Society
Toronto Sick Kids Risky Business Symposium
Boston Childrens' Cardiac Neurdevelomental Family Symposium
Restoring a Mother's Heart Retreat
The Haven Network: A Night of Remember


Follow me on Instagram @jmlindberg